2022 rare disease study

Special Report

2022 rare disease study

Rare conditions affect up to one in ten Americans. We surveyed 160 healthcare providers to understand the challenges they face in diagnosing and treating patients with rare diseases. See their responses in our latest study and learn more about what healthcare provider and life science organizations can do to improve patient journeys.

Download our study to explore the perspectives of 160 healthcare providers who treat patients with rare conditions.

Highlights include:

  • Continued challenges providers face when caring for patients with rare diseases
  • Opinions from providers on how to make an impact on rare disease diagnosis and treatment
  • Suggestions on how to approach provider education and collaboration

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What's inside