2023 rare disease study

Special Report

2023 rare disease study

Rare conditions affect up to one in 10 Americans. We surveyed 145 healthcare providers to understand the challenges they face in diagnosing and treating patients with rare diseases. See their responses in our latest study and learn more about what healthcare providers and life science organizations can do to improve patient journeys.

Download our study to explore the perspectives of 145 healthcare providers who treat patients with rare conditions.

Highlights include:

  • Current challenges providers face when caring for patients with rare diseases
  • How well organizations are equipped to address rare diseases
  • Factors that would have the greatest positive impact in tackling rare diseases today and in the future

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What's inside